Hemophilia activities list hal

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August undefined, 2024

WebObjective To validate the Dutch-Flemish version of the PROMIS-29 Profile v2.01 in adults with hemophilia. Methods Dutch males with hemophilia (all severities) completed … WebThe Haemophilia Activities List (HAL) assesses self-reported limitations in various activities of daily living, which are relevant to persons with haemophilia (PWH). 1, 2 …

BAB 2. TINJAUAN PUSTAKA 2.1. Hemofilia

Web30 jul. 2015 · 40 hemophilia patients under 16 years old, 60 adult patients with hemophilia and 60 parents of children with hemophilia will participate in the pilotage. The validity … Webwith the height and weight. Self-reported limitations in activities at baseline (T0) were measured with the HAL. 19,20 The HAL is a validated 42-item haemophilia-specific self- administered questionnaire assess - ing self-reported limitations in activities in 8 domains. Normalized scores range from 0 to 100, where 100 represents no limitations in barf slang

Hemophilia Activities List - Haemnet

Web30 mei 2024 · As part of a one-day workshop, domains of three widely used patient-reported outcome (PRO) instruments were explored: the Haemo-QoL-A, the Patient Reported Outcomes, Burden and Experiences (PROBE),... Web17 mrt. 2024 · The Pediatric Haemophilia Activities List (PedHAL) is a self- or proxy-administered questionnaire that includes 53 multiple-choice items across seven domains: … WebThe Haemophilia Activities List (HAL) assesses self-reported limitations in various activities of daily living, which are relevant to persons with haemophilia (PWH). 1, 2 The HAL includes 42 items, distributed over seven domains: ‘lying down/sitting/kneeling/standing’, ‘functions of the legs’, ‘functions of the arms’, ‘use of … bar francais budapest

Haemophilia Activities List (HAL) - Allie: Abbreviation / Long Form …

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WebHemophilia Activities List (HAL). Structural validity of each subscale was assessed with Confirmatory Factor Analysis ... (0.01-0.05 IU/mL) and severe (<0.01 IU/mL) … WebObjectives: To describe self-reported activity using the Haemophilia Activity List (HAL) for Swedish adults with haemophilia and to detect any changes over time. Method: The … bar fridges taurangaWebAdult hemophilia patients were used to test it and a short-form arthritis impact measurement scale (AIMS-SF) simultaneously. A total of 98 valid questionnaires were … barf radiator

"Web29 mei 2024 · 患者報告アウトカム：Hemophilia Activities List (HAL) （期間：12ヵ月間） HALは成人の機能的動作に血友病が及ぼす影響の大きさを評価する評価尺度である。7 … " - Hemophilia activities list hal

Hemophilia activities list hal

Haemophilia Activities List – Pediatric (PedHAL) - eLearning Platform

WebDe Hemofilie Activiteiten Lijst (HAL) is een vragenlijst over beperkingen bij activiteiten en participatie voor volwassenen met hemofilie (42 vragen). Met name binnen de dagelijkse praktijk is het echter van belang dat het afnemen van vragenlijsten niet te veel tijd kost. WebHaemophilia Activities List The HAL is a haemophilia-speciﬁc questionnaire, evaluating the self-perceived functional abilities of patients with haemophilia [5]. The provisional …

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Web1 okt. 2024 · We performed a post hoc analysis on Haemophilia Joint Health Score (HJHS, 0-124), X-ray Pettersson scores (PS, 0-13/joint) and the Haemophilia Activities List (HAL, 0-100), using multivariable regression to adjust for age (rate ratio [RR] or odds ratio [OR] [95% confidence… Expand View on PubMed scholarlypublications.universiteitleiden.nl Web15 jun. 2024 · The ordinal joint score assesses 9 items in 6 index joints. 6.Patient Reported Outcome (PRO) instrument - Hemophilia Activities List (HAL) [ Time Frame: 12 …

WebRecently, the Haemophilia Activities List (HAL), a haemophilia-specific self-assessment questionnaire to assess a patient's self-perceived functional ability, was introduced and a … WebThe HAL measures the impact of hemophilia on self-perceived functional abilities in adults. It contains 42 multiple choice questions in seven domains: Lying/sitting/kneeling/standing (8 items) Functions of the legs (9 items) Functions of the arms (4 items) Use of … The World Federation of Hemophilia has published the third edition of Guidelines … Using the universal language of pictures, children around the world can learn … Overview. The hemostatic balance is a fine balance between too much clotting … In 1926, Dr. Erik von Willebrand, a Finnish physician, published the first description … Hemophilia is a bleeding problem. People with hemophilia (PWH) do not bleed any … World Federation of Hemophilia. 1425, boul. René Levesque Ouest. Bureau 1200. … Clinical trials are designed and conducted to find better ways to diagnose, treat, … The Hemophilia Activities List: Final development and validation of a …

WebHaemophilia Activities List (HAL) : une fois par an Profession : - f. de risques de saignements ou lésions articulaires - limitations de la condition actuelle sur le type de travail A ti ité ti /h bbiActivités sportives/hobbies : - quels sports - fréquence - utilisation de concentré avant le sport. Web8 okt. 2024 · Introduction Comprehensive musculoskeletal assessment for monitoring joint health in haemophilia includes both physical assessment with Haemophilia Joint Health Score (HJHS) and assessment of...

WebShortening the Haemophilia Activities List (HAL) from 42 items to 18 items. PWH: 11 : 2024: Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. CFA, PROMIS: 12 : 2024: Assessing the test-retest reliability and smallest detectable change of the Haemophilia Activities List. ICC, PWH, SDC: 13 : 2024

WebTo measure the impact of hemophilia on self-perceived functional abilities in adults Therapeutic area Congenital, Hereditary, and Neonatal Diseases and Abnormalities … barf shop perlebergWebGroen WG, van der Net J, Helders PJ, Fischer K. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List (pedhal). Haemophilia. 2010 … barf si tu pighal ja song downloadWeb28 nov. 2024 · - Haemophilia Activities List (HAL) : evaluates patients’ self-reported functional ability, ... Helders PJ, et al. Measuring patients' perceptions on their functional … bar frontera san juanWebIl questionario FISH può essere utilizzato con altri strumenti di valutazione come l’Haemophilia Activity List (HAL), se contestualmente pertinenti e utili. È noto dalla … suurstoffi 6 6343 rotkreuz zgWeb2 feb. 2024 · Bleeds, Physical Limits Afflict Severe Hem A Patients Despite Prophylaxis. by Patricia Inácio, PhD February 2, 2024. Spontaneous and joint bleeds, and limits on … suurstoffi 22 6343 rotkreuzWeb4 mrt. 2024 · Patient Reported Outcome (PRO) instrument - Hemophilia Activities List (HAL) Complex Lower Extremity Activities Component Score [ Time Frame: 12 months … suurnopeuskameraWebThe PedHAL should be selected to measure the impact of hemophilia on self-perceived functional abilities in children. The current version (0.11) consists of 53 items in seven … suurstoffi 22 rotkreuz